Family Arrangements and Quality of Life in Mexican Patients with Dementia

  • RICARDO ROMO Physician
  • LAURA REYNA Physician
  • CELINA GOMEZ Physician
  • RAUL GUTIERREZ Physician
  • EDUARDO MENDEZ Physician
Keywords: Patients with Dementia, Quality of Life


Introduction: In the aging population, especially in subjects with dementia, the degree of dependence increases, as well as an increase in the needs of health services and social costs of care. The family is the main support network for a dependent older person. However, it leads to a different family structure. Objective: To determine the influence of the types of arrangements of the caregiver family on the quality of life of the patient with dementia. Method: Observational and cross-sectional study. Patients older than 65 years with dementia were included. The family arrangement and the quality of life of the patients, and the caregiver, were identified. The type of family arrangement was classified according to The Savvy Caregiver Trainer's Manual, and quality of life was measured using the Quality of Life in Alzheimer's disease [QOL-AD] scale. Results: 200 patients with dementia and their main caregivers were included. The patients' median age was 80 [73-84] years, 125 [62.5%] women. The main family arrangement identified was the solitary caregiver [51.5%], followed by the collaborative caregiver [25.5%] and sequential caregiver [19%]. We found a lower score on the QOL-AD scale in patients with global intermediate phase dementia and patients with a solitary caregiver and collaborative caregiver compared to those in the initial phase. We found no difference in the score between the different types of caregivers globally or each phase of dementia. Conclusion: The type of family arrangement that the patient has does not influence the caregiver's quality of life or dementia. However, physicians can make a family focus on other factors related to a decrease in family burden.


Berrío Valencia MI. Envejecimiento de la población: un reto para la salud pública. Rev ColombAnestesiol 2012;40[3]:192-4.

Department of Economic and Social Affairs PD. World population prospects: The 2015 Revision, Key Findings and Advice Tables. Vol. 1, United Nations. 2015.

Zúñiga Herrera ME, Vega D, Mendoza ME. El envejecimiento de la población en México. Envejec la Población México Reto del siglo XXI [Internet]. 2004;1944. from:

Gregorio PG, Sánchez JM. Capítulo 17 Demencia. Tratado de Geriatría para residentes. Madrid, España, 2011. Sociedad Española de Geriatría y Gerontología, pp. 173-188.

Gallegos M, Quetzalina D, Fagardo F, Roxana D, Diaz C, et al. Demencia en adulto mayor. México: UNAM 2010. From: Carrasco/publication/259472072_Dementia_in_Elderly_People_Review_2013/links/0c96052bf732cdfdcf000000/Dementia-in-Elderly-People-Review-2013.pdf? origin=publication detail

Lucas Carrasco R. Reflexiones sobre la calidad de vida en las personas con demencia. Alzheimer Real Investig Demenc. 2012;51:3–4.

Rodríguez-Blázquez C, Martín-García S, Frades-Payo B, París MS, Martínez-López I, João M. Calidad de vida y estado de salud en personas mayores de 60 años con demencia institucionalizadas. Rev Esp Salud Publica. 2015;89[1]:51–60.

Crespo M, Hornillos C, De Quirós MB. Factors associated with quality of life in dementia patients in long-term care. Int Psychogeriatrics. 2013;25[4]:577–85.

Hurt C, Bhattacharyya S, Burns A, Camus V, Liperoti R, Marriott A, et al. Patient and caregiver perspectives of quality of life in dementia: An investigation of the relationship to behavioural and psychological symptoms in dementia. Vol. 26, Dementia and Geriatric Cognitive Disorders. 2008. p. 138–46.

Gutiérrez Eizaguirre B. Formación de familias cuidadoras de personas mayores dependientes. Cuadernos de trabajo social 1998;11:203-220.

Canga A, Vivar CG, Naval C. Dependencia y familia cuidadora: Reflexiones para un abordaje familiar. An Sist Sanit Navar. 2011;34[3]:463–9.

Hepburn K, Lewis M, Tornatore J, Sherman CW y Dolloff J. The Savvy Caregiver Trainer´s Manual. [Abstract]. Production by Libby Frost, 2002.

Ready RE, Ott BR. Quality of Life measures for dementia. Health Qual Life Outcomes. 2003;1:11

Srivastava G, Tripathi RK, Tiwari SC, Singh B, Tripathi SM. Caregiver burden and quality of life of key caregivers of patients with dementia. Indian J Psychol Med 206;38[2]:133-6.

Etters L, Goodall D, Harrison BE. Caregiver burden among dementia patient caregivers: A review of the literature. Journal of the American Academy of Nurse Practitioners. 2008; 20[8]:423-8.

Delicado-Useros, M.V. Características socio-demográficas y motivación de las cuidadoras de personas dependientes. ¿Perfiles en transición? Castilla: Universidad de Castilla-La Mancha 2011; 256-321.

Palomino L, Avilés GP, Loyola B, Alberto L, Palomino GL, González A, et al. Perfil del cuidador: sobrecarga y apoyo familiar e institucional del cuidador primario en el primer nivel de atención. 2008. From:

Espín Andrade AM. Caracterización psicosocial de cuidadores informales de adultos mayores con demencia. Rev Cuba Salud Pública. 1999, Editorial Ciencias Médicas 2015;34[3].

Mitrani B, Czaja SJ. Family-based therapy for dementia caregivers: clinical observations. Aging Ment Health 2000;4[3]:200-9.

Almberg, B.,Grafstro¨m, M., &Winblad, B. Caring for a demented elderly person-burden and burnout among caregiving relatives. Journal of Advanced Nursing. 1997; 25, 109–116.

Li, Y., & Sprague, D. [2002]. Study on home caregiving for elders with Alzheimer’s and memory impairment. Illness, Crisis & Loss, 10, 318–333.

Deimling, G. T., Smerglia, V. L., & Schaefer, M. L. The impact of family environment and decision-making satisfaction on caregiver depression: A path analytic model. Journal of Aging and Health. 2001; 13[1], 47–71.

Gee, E.M. Living Arrangements and Quality of Life Among Chinese Canadian Elders. Social Indicators Research 51, 309–329 [2000]. From: